HPP United

Independent organizations.
One global HPP community.

HPP United is a global alliance of independent organizations and patient representatives working together to improve the lives of people affected by hypophosphatasia.

HPP United

OUR GLOBAL COMMUNITY

United across the world

View All Member Organizations
acopel
AERyOH
AFAG
ANDO
API — Associazione Pazienti Ipofosfatasia
Casa Hunter
Hifo-DER
HKPA Korea
HPP Hope
HypoGenek Poland
Hypophosphatasie Deutschland e.V.
Hypophosphatasie Europe
Metabolic Support UK
Osteoporosis Canada
Soft Bones Australia
Soft Bones Canada
Soft Bones United Kingdom
Soft Bones
VKS
XLH Arvelig Rakitis

OUR MISSION

Our mission is to unite the global HPP community to improve diagnosis, expand access to care and treatment, advance research, and ensure all people living with hypophosphatasia are supported and able to thrive.

SHARED PRIORITIES

Working together for progress

Improve Diagnosis

Expand Access to Care

Advance Research

Support People to Thrive

WORLD HPP DAY

OCTOBER 30

One shared day for HPP awareness.

Each year on October 30, the global HPP community comes together to increase understanding of hypophosphatasia, share the experiences of people affected by HPP, and strengthen connections across countries and communities.

Explore World HPP Day
HPP United community gathered for World HPP Day

COMING SOON

Rare Connections in HPP

Rare Connections in HPP, the newest chapter in Alexion’s Rare Connections film series, will make its official public debut in connection with ASBMR 2026 in Boston on Sunday, October 11 at 12:45 p.m. ET. At that time, we will have the film's link provided here.

Rare Connections in HPP film poster showing three people above the film title and Alexion sponsorship information

Together, we make HPP more visible.